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Access to Resources for Patients with Genetic and Neurodevelopmental Disorders

1. This questionnaire is about access to clinical care and clinical research for genetic and neurodevelopmental disorders.

2. Please read the instructions carefully

 

Your completion of this survey or questionnaire will serve as your consent to be in this research study.

This survey is anonymous and no IP addresses will be collected.



A note on privacy
This survey is anonymous.
The record kept of your survey responses does not contain any identifying information about you unless a specific question in the survey has asked for this. If you have responded to a survey that used an identifying token to allow you to access the survey, you can rest assured that the identifying token is not kept with your responses. It is managed in a separate database, and will only be updated to indicate that you have (or haven't) completed this survey. There is no way of matching identification tokens with survey responses in this survey.